I can’t believe it’s been over a month since I last posted! I am hoping tomake it into more of a routine, but it seems like there is always something else that needs to be done first– dinner, bathing Liam, seeing a patient, paying a bill.  This winter has been very hard on those of us with scleroderma– my friends with the disease have been mostly homebound and many are depressed. Yesterday it was finally 60 deg (yeah!) here in Chicago!  I have been in the Treatment Room at La Rabida, a chronic children’s hospital, for a month now, and I seem to have gotten every virus that the kids are bringing here. It’s been a bad flu season here because the flu vaccine didn’t cover the flu virus very well.

Yesterday there was congressional testimony by a scleroderma patient from Los Angeles named Cynthia. (See this link.) She is 13 years old and her congresswoman, Linda Sanchez, was instrumental in pushing the request for congessional testimony. Another woman with scleroderma who also had a bone marrow transplant also testified. Although I recorded CSPAN all day I didn’t catch the testimony on tape, unfortunately.  This is great exposure for scleroderma!

Cynthia Cervantes