I received an email from Lindsey Grogan, the University of Georgia student with scleroderma who is swimming in the paralympics this summer (see this blog post).
Hello!
Sorry it took me so long to reply. Finals are coming up next week so things are pretty busy!vI have focal scleroderma, I think it is similar to or the same thing as localized. I was diagnosed when I was 2. My left leg contracted and
became smaller, and the left side of my face also was affected. As a result, my leg was amputated when I was 7. (I used a walker/crutches to get around before then.) I started swimming that same summer on a recreational team in my hometown, and I got involved with disability swimming my senior year of high school.
It was great to hear from Lindsey and learn a little more about her story.

2 comments
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May 14, 2008 at 12:29 am
Fallon
Have you had any lung related problems with your disease?
May 14, 2008 at 9:14 am
Lexa
hi! welcome to my blog! I am thought to have some mild lung involvement. I have had pretty much normal PFTs but they have fluctuated a bit. Recently my PFTs dropped by 20% and I had a lung CT that showed no fibrosis, but my pulmonologist is still worried that I have developed some lung damage and has me do PFTs every 6 months or so.
How about you? Do you have scleroderma with lung involvement? I currently don’t have any symptoms so I am lucky that way.
Lexa